We are home again and I seem to be doing better than last time. We didn't do nearly as much walking as last time, which is probably what made the difference. My mother-in-law was quite the trooper, driving there and back, then getting up early this morning to cook for a retreat group at the church camp they manage.
I don't have a ton to report on about my tests or anything; they did change my blood volume test and hemodynamic test to a laying down/sitting up echocardiagrams, as the original tests are radioactive and so is the hyda scan I had in the afternoon. Hopefully, it will still show us what we need to know, but if not they will do them when I go back in April. The most interesting, amazing, and totally God thing that happened occurred in the waiting room a few minutes after we arrived. We were in the electrophysiology waiting room with a man and his mother; he was called back and his mom made a phone call. We started talking to her and I'd overheard her mention that her son was having some of the same tests, so we talked about that. Come to find out, not only is her son dealing with very similar symptoms as I am (and getting very few results as well), but they are all from Fort Wayne too! Can you believe it?? I was called back shortly after that, but Sue and Kathie (the man's mom) talked for quite awhile longer. When Kathie learned that Scott had planned a wonderful surprise party for my 30th birthday at DeBrands that he had to cancel because I was too sick to go, she whipped out her bag and handed over, get this... a box of DeBrands truffles! Apparently, she knows Cathy Brand-Beere and she donated several boxes of chocolates to Kathie and Matt for their trip, telling them to "donate the chocolates to anyone who is nice to you." Isn't that awesome? Anyway, I am hoping to stay in touch with Kathie and/or Matt and his family (married with 2 young kids) as we all go through this similar process. I hope you will join me in praying for them, as they struggle to get a diagnosis as well. Enjoy your weekend! Karin
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